Global Registration Goal

By end of 2026, have 200 registered patients that have been genetically confirm RFC1-related disease or clinically diagnosed with CANVAS.

Currently, as shown in tracker below, the registry includes 20 for the United States, 5 from Canada, 2 from Australia, and 10 from other parts of the world.

Worldwide total registered as of June 2026 end = 37 against our goal of 200

Fundraising Goal

By end of 2026, our goal (admittedly ambitious) is to receive $50,000 by the end of 2026.

Currently, as shown in tracker below, we have received $5,000 or achieved 10% of our goal.

Actuals as of June 2026 end = $5,000 or 10% of our $50,000 year end goal

Goal = $50,000

‍ ‍Actual To Date = $5,000