Looking Ahead

The months ahead promise to be an exciting time for the RFC1 Foundation. Our priorities include:

  • Launching the Patient Advisory Committee.

  • Expanding our educational webinar series.

  • Growing our international membership.

  • Increasing educational resources for patients, families, and healthcare professionals.

  • Strengthening collaborations with clinicians and researchers around the world.

  • Highlighting the latest scientific discoveries in future editions of The RFC1 Connection.

As our Foundation continues to grow, so does our ability to connect patients, families, clinicians, and researchers in pursuit of better treatments—and ultimately, a cure.

Upcoming Educational Webinar

Thursday, September 10, 2026 - 5:00PM EDT

Join us for an evening featuring two internationally recognized experts in RFC1 disease.

Andrea Cortese, Md, PhD Peter Todd, MD, PhD University College London University of Michigan

Topics include:

  • Recent discoveries in RFC1 disease

  • Current international research collaborations

  • Future therapeutic strategies

  • Questions from patients and families