Patient Advisory Board

Thank you for your interest in the RFC1 Foundation. If you have genetically confirmed RFC1-related disease or have been clinically diagnosed with CANVAS, would you consider joining our Patient Advisory Board (PAB)? If you would like more information or to discuss the board and available roles, please complete the form below and we will contact you directly.

The RFC1 Foundation is committed to respecting and protecting the privacy of our donors, supporters, and website visitors. We use your information to:

• Communicate updates about our mission, programs, and fundraising efforts

• Maintain internal records and membership history

• Improve our website, outreach, and operations

We do not use this data for purposes unrelated to our mission.